RESEARCH
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QUESTION:
Why bother? What is this documentary aiming to do/ what problem is it trying to solve? What is the scale of the problem? What is the cost of the problem- human and financial? Is this a priority at national or international level- is it reflected in policy, media, government, civic society?
WHY:
Prevalence and incidence increasing at earlier ages in greater numbers overall Prevalence of homelessness and those with mental dis-Ease becoming homeless (need medical care) and increased prevalence in prisoner population and in young adults/children with no place to be go, and no efficient care available for many Veteran suicides, overall increased suicide in the untreated populations (all ages). MENTAL HEALTH https://link.springer.com/article/10.1007/BF02106536
SOLVE:
Problem of inefficient inclusivity and access to care for those suffering with mental dis-ease which means:
- Issue of No access or;
- If access not treating the whole person with necessary modes of inclusive care such as medication AND counseling AND coping mechanism AND access to meditation or green spaces and proper nutrition …. Etc. (concomitant therapies of acupuncture/sound therapy/group green walks such as Forest Dowsing);
- Undeveloped PROTOCOLS of INTERDISCIPLINARY CARE in care for those diagnosed or suffering – therefore, provide sample of inclusive care models and COST benefit of spending money to save money and spending money to save lives and improve quality of life;
- Provide information regarding the EARLY AGE influence of family and care in the developmental process of children (that is a whole other issue) but it is part of the development of mental health issues as related to early child experiences in addition to physiological issues that are not environmental such as schizophrenia;
- Provide information/reminder that mental health and development of dis-Ease include Stress, genetics, nutrition, perinatal infections and exposure to environmental hazards are contributing factors to mental disorders (WHO).
HELP:
a) demonstrate importance of interdisciplinary care and community programs;
b) demonstrate gap in care and need for care;
c) demonstrate need for mental hospital care for those homeless and other and provide a theoretical model that
might be included in mental hospitals based on experiences of those having been in them – such as intake
process, speaking to the admitted person as a human being, providing green or outdoor space and access to
natural light and gardens or other, providing counseling not just prescriptions which are needed but as a part of
care, providing exercise and team activity, etc.;
d) demonstrate the need for family unit and importance of early child development.
GOALS:
Begin conversation between government and non-governmental agencies (Insurance companies both government and private, University hospitals, private care facilities, health care providers {psychiatrists, psychologists, therapists, acupuncturists, sound therapists, fitness trainers, sports trainers / sports teams, non-profit organizations helping communities and those with dis-Abilities, world health leaders/organizations such as WHO, UN, CDC, and local governmental public health agencies},
REGARDING:
Including all modes of care in the care of those with depression; anxiety; bi-polar diagnosis; low self-esteem and abused persons (domestic or other) and, any other diagnosis or struggle.
STATS:
US: (National Alliance on Mental Illness)
- 1 in 5 adults approx. 49 million in U.S. 18.5% experience mental dis-Ease in a given year
- 26% of homeless in the U.S. have mental dis-Ease
- Only 41% of adults (recorded diagnosed) received mental health services in past year
- Half of mental chronic “illness” begins by age 14
- 20% of Inmates/Prisoners also have “recent history” of mental “illness”
- Of 20.2 million with substance abuse, 50.5% had co-occurring mental “illness” (10.2 million people)
GLOBAL: (World Health Organization)
- 300 million suffer with depression
- 60 million are diagnosed with bipolar “disorder”
- 23 million are diagnosed with schizophrenia or other psychoses
- 65% to 85% in low to middle-income countries DO NOT receive care/access
- 35% to 50% of those high- income countries DO NOT receive care
- 800,000 people die to suicide annually (of those countries who have a registry) most likely many more are not reported or trackable
- 10% to 20% of children and adolescents experience depression/other
COST:
United States:
- $193.2 billion in lost earnings per year
- $ 57.5 billion in 2006 for mental health care in the U.S., equivalent to the cost of cancer care. But unlike cancer, much of the economic burden of mental illness is not the cost of care, but the loss of income due to unemployment, expenses for social supports, and a range of indirect costs due to a chronic disability that begins early in life (NIH)
- mood disorders, bipolar/dysthymic disorders, major depression are 3rd most common causes of hospitalization in U.S.
- Family destruction and stress loss of home and family structure as well as financial loss
- Suicide – 10th leading cause of death in U.S., 3rd leading cause in ages 10 to 14, and 2nd leading cause in ages 15 – 24, more than 90% of children who die of suicide have had a mental health condition
- Veterans die at a rate of approximately 18-22 suicides per day
- Lack of hope for quality of life or integrating into society
- Untreated mental dis-Ease creates secondary/tertiary chronic health conditions (may die up to 25 years earlier than those without mental dis-Ease due to untreated medical conditions)
- $2.5 Trillion (two-thirds in indirect cost) in 2010 (Global cost of mental illness) World Health Organization. (WHO 2011a). Global status report on non-communicable diseases 2010. Geneva: WHO.
- Projected increase to over $6 trillion y 2030
It is s topic of international importance and concern as seen in global summits, media, CDC, World Health Organization, local and national governmental agencies, the American Psychological Association (APA), and international associations both governmental organizations (GOs) and non-governmental organizations (NGOs). Link to international organizations involved in mental health.
WHY NOW:
1) Why now? How is this issue addressed today and what gaps or limitations to current practice exist? What is the human and fiscal
cost of continuing with the status quo?
- Increased global communication regarding the increase in prevalence and incidence and cost burden not only financially but emotionally.
- Financial losses to get care, and financial losses due to inability to work and contribute to society and the flow of social structure, community, and financial contribution.
- Fiscal cost mentioned above in STATS billion in U.S., Trillions Globally.
2) GAPS and Limitations:
- Mentioned above in section 1 (modes of care are not inclusive, and are separated not integrated). Admission to mental hospital – protocol is mainly concerned with stabilizing patient (which is important) with prescriptions, but the hospital facility often DOES NOT have therapists, counselors, humane communication training, out door spaces, greenery, and activities, nor additional modes of care such as art or music therapy, dance, or exercise or group exercise to refocus or change the focus of those who might be able to focus on external help in conjunction with Rx (prescription) help.
- Limitations of expense and proof for new facilities to incorporate staff and space for concomitant/additional care practices – WE WANT TO INSPIRE THE DEVELOPMENT OF INCLUSIVE CARE PRACTICES AS PART OF THE OPENING AND EXPANSION OF MENTAL HEALTH CARE FACILITES AND PROGRAMS, BOTH OUT AND IN PATIENT CARE.
- WE WANT TO begin the conversation of school systems incorporating these modes of care in schools and early education, as there is proof confirmed by CDC and WHO and NIH that early life influences later life (health, mental and other)
- Activities
- Group therapies
- Music and art for stress
- Sound therapy
- Any others that we find if appropriate
- Family inclusion in schools and care as what they do affects their kids
COST: Mentioned in section 1 Include: work lost, homes lost, family structure, homelessness, veteran issues, all population increases in suicide.
3) Is the solution available? What new approach is this documentary putting forward and why do we believe in this? Why has this new approach not been adopted previously?
SOLUTIONS:
- HUMANIA team is coming up with solutions to amalgamize individual compounds into one:
- We want to provide information on all the treatments and stress reducers and care practices to mesh them or put them together based on existing scientific research published regarding the use of additional mental health care practices that have shown promise in reducing depression, anxiety, reducing high dosage of meds and…
- Practice findings in literature and from those using modes of care on their patients verifying that individuals utilizing alternative modes of care in conjunction with Psychiatric care have better outcomes. (both care practitioners and the patients receiving the care will weigh in)
- BETTER OUTCOMES: less hospital admission, going back to work, more time outside with family, improved communication, … any outcome measures.
- We want to provide information on all the treatments and stress reducers and care practices to mesh them or put them together based on existing scientific research published regarding the use of additional mental health care practices that have shown promise in reducing depression, anxiety, reducing high dosage of meds and…
OTHER FACILITES interdisciplinary work on CANCER / less available for mental health
- Cancer Centers of America – https://www.cancercenter.com/
- They use nutrition, medical doctors, meditation, holistic care
- These are always more expensive, and not available to low or middle income
- MENTAL HEALTH https://link.springer.com/article/10.1007/BF02106536
- Some clinics and independent practitioners incorporate one to three modes of care such as therapy, meditation, and exercise
- BOOK CHAPTER https://www.telethonkids.org.au/globalassets/media/documents/aboriginal-health/working-together-second-edition/wt-part-3-chapt-13-final.pdf
- INTERDISCIPLINARY does not mean that HOLISTIC care is included, it is a general team. A new word or term can be created by HUMANIA to include not only medical team and administrative teams but HOLISTIC or ALTERNATIVE care practices such as acupuncture, and the anxiety treatment that is accepted NEUROFEEDBACK, and many more
PREVIOUS STUDY:
Individual success stories have been published but there is no medical care practice provided by insurance companies, or for care-facilities that are funded by government funds that have taken the financial risk of combining care practices:
- Barriers of developing these modes of care are financial, not being reimbursed, and note enough scientific evidence that “way out there” practices such as “sound wave therapy”, biofeedback, acupuncture work efficiently enough to warrant including them in medical practice.
- Barriers for patients, if they are not stable they would not know to get care and COST of alternative care is also high, and often the patient or person suffering does not have that kind of money.
4) Who cares about this? Who wants change, who does not? Risks and benefits.
- Families and those suffering with mental illness, they care,
- Governments care if not for altruistic and human-interest concerns, then for financial concerns as a nation cannot support itself if those in it cannot support themselves:
- Cost of care and cost of loss of employment make it a public health problem due to disability, and unemployment, a cycle of increased depression/suicide.
- Risks for doing documentary and for Implementing inclusive programs:
- Overwhelming intentions, people may feel it is too daunting.
- Not yet done, so no good model of practice exists except on smaller scales in independent clinics, or high cost clinics.
- A potential resource is where Denise’s daughter is in now/she stated it includes things that are very helpful (INTERVIEW administrators of that facility).
- If no double-blind placebo-controlled studies are provided on the efficacy of holistic treatment approaches (which is difficult in vulnerable populations such as those with mental dis-Ease), then credibility can be compromised.
- Old school thinking and ridicule by medical community.
- Feeling comfortable to continue status-quo
- Difficulty inspiring a change in the way the “machine” operates.
5) Will the new approach be adopted? Why – why not? If the new approach works what differences will it make to people, to society, to perspectives on Mental Health.
ADOPTION:
- First a conversation has to begin to create awareness through education to the viewers,
- Providing verified individual solutions might help improve communication between NGO’s and GOs as well as private practitioners on the incorporation of multi-solution approaches,
- Providing cost benefit analysis can inspire government and insurance companies to participate in the implementation of program development: including holistic care, paying clinics who incorporate interdisciplinary approaches,
- The purpose of the documentary is to begin a conversation between the pubic and the organizations and individuals providing care regarding the need for more care facilities, and the type of care that should be provided.
- The purpose of the documentary IN ADDITION, is to remind society of the importance of personal responsibility, child, development, and the need to help reduce the increased prevalence of early childhood mental health dis-Ease development (some you cannot such as schizophrenia) but depression, bullying, anxiety, and suicide prevention is possible.
DIFFERENCE IT WILL MAKE:
- Hope for a better personal future.
- Belief that caring for those with mental health dis-Ease is worth it and can make a difference (Health Belief Model): One needs to believe it can make a difference in order to make a behavior change that would create a different outcome (Those providing care types, and those choosing to get care).
6) Why us? Why does this team make sense to address this topic?
- Those who have suffered or have seen those in their family/friends suffer/losses.
- Those involved work in public health, work with dis-Abilities and vulnerable populations to hep reduce depression and development of mental health problems such as UNESCO, Judo Foundation for the blind, Universities, and Psychiatrists.
- Documentary website
- Documentary fund raising
- Documentary trailer
- Documentary production etc.
TARGET AUDIENCE:
Targeted for both the general-public and those stakeholders influencing care and policy change can help bridge the gap between those who need help and those who can provide it. Over 27% of American adults experience some form of mental illness within 12 months; they are hungry for hope, and will feel heard through this documentary. Additional audience, will include community involvement not only in clinical care facilities, but churches, synagogues, other religious organizations. Schools, colleges, and their students are also targeted. Exposure audience will come from television, network, cable, internet, and community stakeholders.
CORE AUDIENCE:
The PEW Charitable Trusts / Those looking for New Help
- 28%-30% of internet users looked up depression, anxiety, stress, or mental health
- 41%-54% of internet users looked up exercise and fitness
- 18%-23% of internet users looked up alternative treatments and medication use
- 33%-38% of internet users looked up alternative treatments overall
- 2.8 million youths, ages 12 to 17, had at least one major depressive episode in 1 year, in the U.S.
- 10%-20% children and adolescents experience mental disorders (WHO)
- 27% of U.S. adults experience some kind of mental illness within a 12 month period, and 47.7% over one’s lifetime (WHO) From: https://www.theatlantic.com/health/archive/2011/10/why-more-americans-suffer-from-mental-disorders-than-anyone-else/246035/#slide1
- 18.5% adults experience mental illness
- 4.0% (9.8 million) experience serious mental illness in a given year
- 21.5% youths ages 13 to18 experience severe mental disorders at some point in their life
- 1.1% of U.S. adults live with schizophrenia
- 2.6% of U.S. adults live in bipolar disorder
- 6.9% of U.S. adults had at least one major depressive episode in the past year
- 18.1% of U.S. adults experience an anxiety disorder such as posttraumatic stress disorder, obsessive compulsive disorder, and specific phobias
- 20.2 million U.S. adults who experienced substance abuse, 50.5% (10.2 million) had a co-occurring mental illness
- GLBT (gay, lesbian, bi-sexual, transgender) 2x more likely than straight people to suffer mental health problems
- 350,000 or more churches (Harford Institute for Religion Research)
- 3727 (2001 Synagogue Census, no new stats available),
- 76% of those attending Synagogue believed their place of worship should be involved in public policy advocacy to address social issues/problems (Statistica.com, 2012)
- Confirm interest by medical practitioners and those suffering with mental illness of the complementary use of
Bureau of Labor and Statistics/ Mental Health Professionals
- 24,800 Psychiatrists in 2014
- 168,200 counselors, and MFT (marriage/family therapists) 2014
- 106,500 Licensed Psychologists in the U.S. in 2014
- 17% of patients self-reported anxiety/depression to their PCP (primary care provider)
- 62% of people asked, reported they knew of someone receiving treatment for mental health (Friends, family)
- 3rd most important cause of disease burden – Unipolar Depression (WHO)
- 6.7% U.S. adults experience major depressive event (CDC) in 12 months
National Institute of Mental Health, National Institute of Health
- 17.9% of U.S. adults age 18 or older have “any mental illness”
Hospitals, Healthcare Facilities, Community Centers, Outpatient, and Inpatient treatment facilities, Schools
- More facilities will need increased awareness of complementary treatments to traditional methods
- 24,053 public secondary schools and 33,619 private schools (U.S. Department of Education, 2016)
- 4,700 colleges (U.S. Department of Education, 2016)
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UNESCO
UNESCO is responsible for coordinating international cooperation in education, science, culture and communication. It strengthens the ties between nations and societies, and mobilizes the wider public so that each child and citizen:
• has access to quality education; a basic human right and an indispensable
prerequisite for sustainable development;
• may grow and live in a cultural environment rich in diversity and dialogue, where heritage serves as a bridge between generations and peoples;
• can fully benefit from scientific advances;
• and can enjoy full freedom of expression; the basis of democracy, development and human dignity.
“With a world population of 7 billion people and limited natural resources, we, as individuals and societies need to learn to live together sustainably. We need to take action responsibly based on the understanding that what we do today can have implications on the lives of people and the planet in future. Education for Sustainable Development (ESD) empowers people to change the way they think and work towards a sustainable future.
UNESCO aims to improve access to quality education on sustainable development at all levels and in all social contexts, to transform society by reorienting education and help people develop knowledge, skills, values and behaviors needed for sustainable development. It is about including sustainable development issues, such as climate change and biodiversity into teaching and learning. Individuals are encouraged to be responsible actors who resolve challenges, respect cultural diversity and contribute to creating a more sustainable world.”
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disAbility:
The word “disability” alone is sometimes perceived in a negative or less than favorable way and worthy of empathy, sadness, irritation, disgust, disappointment and other emotions of individuals living in the margins of society. Disability is an umbrella word for impairments, activity limitations and participation restrictions.
This need not be the case.
All too often people mentally look down on one experiencing or demonstrating a disability and assume a lack of something. Or, not being “normal” or being diverse.
Article 25 of the UN Convention on the Rights of Persons with Disabilities reinforces the right of people with disabilities to attain the highest standard of health care without discrimination.
The World Health Organization (WHO) estimates 15% of the world’s population lives with some form of disability of which 2-4% experience significant difficulties in functioning. This is the largest minority group in the world by some estimates.
Disabilities covers a broad band of conditions, symptoms, both physical and mental which one could consider a “disability.”
In the case of the blind and visually impaired of the Blind Judo Foundation, all students are blind or visually impaired. Visual impairment is clearly a disability, yet the second largest sport practiced in the world, Judo, is turning those who dedicate and routinely practice their sport into stores of Abilities and success.
Judo is about learning confidence, character, humility, respect, responsibility and leadership. These key principles transcend all aspects of one’s life with sports being the catalyst.
A select few of the Foundation’s students can literally stand on the world stage, the Paralympics, winning Gold, Silver and Bronze Medals as symbols of their disAbility to succeed even those they have a “disability.”
This is just one example of the UNESCO Chair’s Project of using physical fitness, recreation and sport by inclusiveizing all diverse and individuals with disabilities into the world of Abilities.
People with disabilities have Abilities waiting to be recognized, discovered and uncovered. Be the person to see the hidden potential shining behind the clouds of our own perceptions of disabilities. Have patience and look for hidden values waiting inside us all.
We need to reach beyond our grasp seeing the light Shining within us all.
Capabilities and disability: the capabilities framework and the social model of disability: Disability & Society: Vol 19, No 7
This article seeks to illuminate the complementary between the capabilities framework, developed by Amartya Sen and others, and the social model of disability. Common themes include the relationship between social barriers and individual limitations, the importance of autonomy and the value of freedom, and dissatisfaction with income as a measure of well‐being. Bringing the two approaches together has implications for analysis (for example in identifying poverty or disadvantage), and for policy, which are briefly illustrated. The article concludes that the capabilities framework provides a more general theoretical framework in which to locate the social model of disability, without compromising any of its central tenets; and the social model provides a thorough‐going application of the capabilities framework. Each can benefit from exposure to the other.
Models of disability: abstract
This paper critically reviews medical approaches to the identification and treatment of disability. The medical model locates disability within individuals. By contrast, this paper argues that disability cannot be understood outside its social context. As such, some of the assumptions about normality and difference which underpin traditional approaches to the diagnosis and treatment of disabled people are challenged. If it is accepted that disability is located not solely within the mind or body of an individual, but rather in the relationship between people with particular bodily and intellectual differences and their social environment, then greater focus may be placed on ameliorating disability through changes in social policy, culture and institutional practices.
Key Words: disability models, social change
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